Obviously being in the hospital was another limitation in itself that couldn't be helped, not to mention last week when she felt so miserable she could hardly get off he couch. But now that she's home and feeling well we've gone to the movies, the beach, the zoo, the learning center and tomorrow we'll try the park. We're experiencing beautiful things again. Exciting things. Things that make life worth living.
I've really had to make a conscious decision to experience good things again, and to experience them fully. I think I was so afraid that if I felt happy I wouldn't be able to cope if it went away again. And I realized I had become really strict with the kids, I think in order to try to control life. It's taken me weeks to remember how to play, how to smile, how to be silly again. How to have fun, and to not fake that I'm having fun, but to fully enter into it.
It's taken a lot of prayer and a lot of self coaching. I've had to redefine priorities and to confront my fears. I'm so glad I did. Tonight the kids and I ran around the couch, playing zombie mommy for the first time in months, both kids screaming in delight. I smiled and laughed and joked, and it was finally free of residual pain.
Life is better when risks are taken. I've decided it's better to live fully now, while there's life to be had, rather than to try to keep life in my clutches, only to find out I was holding onto emptiness. You can't lose what you don't have, so how could I be afraid to lose joy if I wasn't living it anyhow? It would have been misery now and misery then...only worse then, because there's no way to go backwards to recapture the time that could have been lived.
I'm so glad we realized that we have to cram life into the moments we have. Grace starts steroids again tomorrow and we'll have another week of a miserable kid sleeping on the couch all day. I'm so glad we got to get in some fun before we have to pause again. And hearing Grace laugh, seeing her dance and play, and take care of her brother, it's the vision of her that I hold onto when she's swept away into the state of living defined by her chemo.